If you are wondering what I have been up to for the past 7 years, here is a link to my previous blog: Good Livin’. I still try and post occasionally on it as well as here. Looking back, I don’t know how I managed to fit in everything I did. I guess when you are having fun time flies. This post is my first post in a while. I realized that I really didn’t plan for what my life has given me. Kind of ironic since I’m definitely a planner.
3 words that will forever change my life, the people in my life, and the way I feel about so many things.
7 years ago I learned 3 new words. These words combined form more than just a rare genetic condition. They have a meaning to myself and the select group of people that have also been introduced to these words.
Learning how to say these words was a challenge at first, but understanding what they mean will take a lifetime.
The first day that any parent learns of any condition that their child has, or could possibly have, you immediately become AWARE. Aware of the what could, what will, how it does and can affect you, your family and most importantly your child.
You wonder what will happen. Will they have it forever? How do they get rid of it? Will they live to be 100? Will they live to see tomorrow? What happens if they don’t get the medicine? What happens if…. The questions go on and they never stop.
Because of my children, I am a better person. I am more AWARE. I am more aware that there are so many other rare conditions that children are born with or will end up having. For any rare condition, having AWARENESS if half the battle. If your not aware, it doesn’t exist. But it does.
Today, 7 years ago, I was made aware of a condition called Congenital Adrenal Hyperplasia. I will forever have the day permanently etched into my memory. I made a promise to Jake that I would fight for him and this condition. Awareness of the condition is the first step.
Most of our friends know about what CAH is and that 2 of my 3 children have it. I always like to say that we got lucky getting this rare condition. My kids are healthy, happy, and full of life.
Thank you to all our friends and family who support us in just being aware of what our kids have. There is much work to be done on this condition. 1 in 16,000 children are born with CAH. Medicines and technology are constantly evolving. Laws still need to be written that will directly effect MY kids. I am only one person, but as any parent would, we would walk to the ends of the Earth to help our children. I do my part and wanted to thank everyone for doing theirs. Just knowing that others know about CAH means more than you will ever know.
As I was watching this weeks epispode of Parenthood, the characters, ….were in the doctors hospital office talking about weather they wanted to learn the sex of their new baby. Obviously, they would find out eventually, but because their son has Aspergers, they were hoping for a girl because there would be less of a chance that she would have the same condition. The highly controversal process of “gender selection“, is something that many debate over…heatedly. I can see Read more
Today marks the end of an era. I sadly parted ways with a trusted friend who had seen me through the best of times and the worst of times. She was in my life for 5 and a half years and each time we meet, I was always excited to see her.
I remember the day we meet like it was yesterday. It was the summer of 2006 and my family was on the most memorable vacation we have had to date. It was at Rosemary Beach Read more
I need to simplify. I need things to be in order in order to not go crazy. I have been blogging since 2004. I wish that I had been more consistent. But I think I now know what I have to do. SImplify. Everything. In my life. I am usually a woman of many words. But from now on, less is more. Simple is good. Life is sweet. Simple. I feel better already.
I read a blog post from my friend the other day and it really made me think about how I parent. Spoiling my kids is not really something I do too often. When I think of spoiling, I think about how some kid who are spoiled, act like spoiled brats! I am not a fan of “those kids” and really don’t want mine to turn into them. However, I got to thinking… Read more
There is one thing that I am very protective about. Aside from the normals, I am so protective about my kids sleeping. Why? Because if they wake up, then it’s me that has to do the work to get them back to sleep. Not you. ME!
I don’t know why this is such a hot button with me, but I don’t think that people understand that with 3 kids, Read more
I haven’t been back to Michigan in 7 years. My grandparents have yet to met Shelby. I haven’t seen my California cousins in over 10. Read more
Updated for February 2015
So against my better thoughts and because they even give my kids a day off of school to go to it, I up and decided to take the kids to the Florida State Fair the other day. It was kind of a last minute decision, but what the heck… Read more
So this is my personal blog. My space to write what I want. If you like it great! If not…you really don’t want me to tell you where I think you should go. I have actually been blogging for quit a while. I you want a few good reads Read more