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Adventures CAH Everyday

The Perfect Storm

The perfect storm consists of everything in my most darkest nightmares to happen at one time. Today was that day. I knew that it was always a possibility but I didn’t think I would see it happen for a while.

Both Jske and Shelby are resting in ICU from an adrenal crisis. It was the stomach bug, low sodium, low sugar and other levels that were thrown onto a spiral that I could not control.

With 2 kids side by side in the ER at 5am, my world came to a stand still. This is what it feels like to have your heart torn from your body. We waited for both kids to be transferred to the ICU where we wait. We wait to see the damage caused by the perfect storm we couldn’t prevent.

CAH is the condition that we live with daily. It’s not something that is common. Nor something you would even be able to know the kids have. But when it is time, it comes out with a vengeance and makes sure we know it lives with us.

My disaster relief team is large and strong. They come in packs, doing everything to help us get through this tough time. I lean on them for support and for honestly do not know how I could make it through some days without them. I hope they know I would do the same for any of them on any given day.

But now we wait. We wait for Jake to show us signs that he is ok. Shelby is doing much better. Resting but here. I do not like to sit still, but when you are in the eye of the perfect storm, that is what you have to do. Sit still and wait for the storm to pass to see the rainbow.


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Meet Tampa Mama, Marisa Langford


Marisa Langford is the founder of the Tampa Mama Blog, a blog that guide parents around the city (and beyond) to the best places for kids and families. She is a working Mom of four, carefully juggling a full time career in experiential marketing, leading Girl Scouts and all the chaos that goes along with a family of 6.

Marisa is a speaker, influencer, and passionate about all things mom. She partners with brands that share her passion for healthy living, on the go fun and family togetherness.

In her personal blog, Marisa writes about motherhood, family travel, how to manage a household of 6, and of course all the fun places to go as living in Florida is like living on a permanent vacation. She has a daughter who is a Type 1 Diabetic and 3 children with rare medical conditions.

Marisa has been published by Huffington Post, Where Traveler, Parents.com, the Today Show Parenting Blog, Trekaroo, Tampa Bay Parenting Magazine, and many others. She contributes to a variety of online publications and also appears monthly on Great Day Tampa Bay on WTSP New Channel 10.

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